We Believe it's OUR duty to Educate, Advocate & Participate

We believe that the most effective fight against acute CoVid-19 and Long Haul CoVid will be in making ethical and equitable healthcare accessible to the highest impacted communities and equipping the people with information, resources, and access to innovation that they can use to obtain fair and proper care.


New Partners and Friends Alert!

 We are proud to announce the support and new partnership we have with Responsum Health for Long COVID. Responsum Health connected with us in 2020 as they realized the necessity of including Long COVID patients as advisors in their development of technology-based tools to help with providing the public with vetted medical information, symptoms tracking, and facilitating COVID recovery and patient support. Their App, RESPONSUM FOR LONG COVID, is available on the web or as a downloadable Apple iOS mobile app. Check them out, there is a very vibrant patient community within the app with loads of easy to understand articles to aid in your health journey. Welcome Responsum and thanks for being an ally! Click the Responsum logo below to check out their resources for Long Haulers and more.

We support believing the patient’s experience.

We support transparent inclusive research.

We support collaborations that heal, empower, and inform.

mailing list
I would like to receive occasional notices and updates about events and Long Covid research


As an individual person you have the opportunity to help shape how Black patients recover from Long CoVid and how we receive care for COVID-19 and other chronic conditions. Here are some ways you can get involved: